Learn more about the keynote speakers who will be presenting at this year’s annual meeting.
- Wednesday, March 6: Thomas R. Insel, MD, President
andCo-Founder, Mindstrong Health
- Thursday, March 7: Heidi Rehm,
PhD, FACMG, Co-Leader, Broad Center for Mendelian Genomics
- Friday, March 8: Sharon Terry, President
andCEO, Genetic Alliance
Thomas R. Insel, MD
Thomas R. Insel, MD, a psychiatrist
Sharon F. Terry is President and CEO of Genetic Alliance, an enterprise engaging individuals, families
As ‘just a Mom’ with a master’s degree in theology, she cofounded PXE International, a research advocacy organization for the genetic condition pseudoxanthoma
In her focus at the forefront of consumer participation in genetic research, services and policy, she serves in a leadership role on many of the major international and national organizations, including the Precision Medicine Initiative Cohort Advisory Panel; Accelerating Medicines Partnership; the Cures Acceleration Network Review Board, and the Advisory Council, National Center for Accelerating Translation Science, NIH; National Academy of Medicine Board on Health Science Policy, the Roundtable on Genomics and Precision Health, and the Regenerative Medicine Forum; the PhenX scientific advisory board; the Global Alliance for Genomics and Health; the International Rare Disease Research Consortium Executive Committee; and as Founding President of EspeRare Foundation of Geneva, Switzerland. She is Co-PI of the PCORnet Coordinating Center and Chair of the PCORnet Engagement Committee. She was a member of the Blue Ribbon Panel’s Working Group on Enhanced Data Sharing for the Cancer Moonshot. She received the Health 2.0 Health Activist award in 2016. In 2017, she co-founded the
Terry is an Ashoka Fellow. She is an avid student and facilitator of Gestalt Awareness Practice. With her husband Patrick, she paraglides, runs, and dreams of spending more time writing and reflecting.